Sep. 7th, 2016

athousanderrors: from 'Spirited Away' - soot sprites, clutching confetti stars, running about excitedly. (Default)





MY FRIEND AND I ARE JUST BAWLING. We cannot see this is public. We’re a goddamn blubbering mess.

I need to watch this by myself at home with 6 boxes of tissues.

I am a wreck from the trailer

Oh Jesus Christ I’m already crying

fuuuuuck. I am in PIECES and this is just the trailer. 
athousanderrors: from 'Spirited Away' - soot sprites, clutching confetti stars, running about excitedly. (Default)



hey uh. i dont usually do things like this but, here we go.

heya, my name is mel ! before you scroll just know that im not asking for money or anything like that, please take a minute to read this.

as some of you know, i was in the hospital for a few days in january. i havent talked about it too much since, heres what happened.

so, i have this super, super rare blood disorder called paroxysmal nocturnal hemoglobinuria (PNH) and it effects my life constantly. i cant walk more than a few blocks without feeling weak, winded, sick. i get headaches, im prone to things like blood clotting and leukemia, i have severe anemia, etc. im at the hospital every week receiving the most expensive drug in the world, the only way to put it off and treat it. on top of that, ive gotten ~10 blood transfusions this year and i see more in the future.

my family has put their lives basically entirely on hold to be around for me. as you can imagine, this isnt the ideal situation for us.

now, as i said, im not going to ask for your money or anything. i would feel bad, that’s not what i need at all. there will be an option for that, though, if you cant help/would rather help that way.

here is the important part: the only known cure for PNH is a 10/10 bone marrow match

im white and usually this wouldnt be such a big issue, but i have ashkenazi jew ancestry, and its been a big obstacle in finding a bone marrow match for me. so here is what i ask of you

^^^ this link ^^^
this link leads to the service that you can use to see if you can cure me.

for free !!! all free ! they send you a free swabbing kit, and free envelopes for sending the swabs back. they ask you a few questions, but thats all and you dont have to pay any money at all.

even if you cant save my life, maybe you can save someone elses. so please, please, please, reblog this post.

and if you can, see if you can be my match. its the best thing you could do for me and my family right now. thank you so much.

and if for whatever reason, you would rather send me money for comfort things and food at the hospital and for my home life, my paypal is here one more time, please.

be the match is only in america !! if you message me, ill help you find your substitute

For Canadians, you’ll go through the Canadian Blood Services, the program you’re looking to register with is One Match.

For people outside the US and Canada, check out either  Bone Marrow Donors Worldwide (BMDW) or the  World Marrow Donor Association (WMDA).  They’re probably a good place to start figuring out where you need to look to register as a donor.

I joined Be The Match because of this post, and it was a pretty cool process. I’m weirdly excited about the idea of being a marrow donor for someone. 
athousanderrors: from 'Spirited Away' - soot sprites, clutching confetti stars, running about excitedly. (Default)
via Wilder, ‘Willie Wonka’ Star and Comedic Icon, Dies at 83:


2016 is the worst.
athousanderrors: from 'Spirited Away' - soot sprites, clutching confetti stars, running about excitedly. (Default)

Some trans history for trans day of visibility! Here is a poem written in 1322 by a jewish trans woman! (source and alternate translation). In case you were in need of the knowledge that yes, trans people have been around for a long, long time. [this is an english translation from hebrew]

“What an awful fate for my mother
that she bore a son.
What a loss of all benefit! …
Cursed be the one who announced to my father:
“It’s a boy! …

Woe to him who has male sons.
Upon them a heavy yoke has been placed, restrictions and constraints.
Some in private, some in public,
some to avoid the mere appearance of violation,
and some entering the most secret of places.

Strong statutes and awesome commandments,
six hundred and thirteen.
Who is the man who can do all that is written,
so that he might be spared?

… Oh, but had the artisan who made me
created me instead—a fair woman.
Today I would be wise and insightful.
We would weave, my friends and I,
and in the moonlight spin our yarn,
and tell our stories to one another,
from dusk till midnight.
We’d tell of the events of our day, silly things,
matters of no consequence.
But also I would grow very wise from the spinning,
and I would say, “Happy is she who knows how to work with combed flax and weave it into fine white linen.”

And at times, in the way of women,
I would lie down on the kitchen floor,
between the ovens, turn the coals, and taste the different dishes.
On holidays I would put on my best jewelry.
I would beat on the drum
and my clapping hands would ring.

And when I was ready and the time was right,
an excellent youth would be my fortune.
He would love me, place me on a pedestal,
dress me in jewels of gold,
earrings, bracelets, necklaces.
And on the appointed day,
in the season of joy when brides are wed,
for seven days would the boy increase my delight and gladness.

Were I hungry, he would feed me well-kneaded bread.
Were I thirsty, he would quench me with light and dark wine.
He would not chastise nor harshly treat me,
and my [sexual] pleasure he would not diminish

Every Sabbath, and each new moon,
his head he would rest upon my breast.
The three husbandly duties he would fulfill,
rations, raiment, and regular intimacy.
And three wifely duties would I also fulfill,
[watching for menstrual] blood, [Sabbath candle] lights, and bread…

Father in heaven, who did miracles for our ancestors with fire and water,
You changed the fire of Chaldees so it would not burn hot,
You changed Dina in the womb of her mother to a girl,
You changed the staff to a snake before a million eyes,
You changed [Moses’] hand to [leprous] white
and the sea to dry land.
In the desert you turned rock to water,
hard flint to a fountain.

Who would then turn me from a man to woman?
Were I only to have merited this, being so graced by your goodness…

What shall I say? Why cry or be bitter?
If my Father in heaven has decreed upon me
and has maimed me with an immutable deformity,
then I do not wish to remove it.
And the sorrow of the impossible
is a human pain that nothing will cure
and for which no comfort can be found.
So, I will bear and suffer
until I die and wither in the ground.
And since I have learned from the tradition
that we bless both the good and the bitter,
I will bless in a voice, hushed and weak,
Blessed are you, O Lord,
who has not made me a woman.


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